U.S. to Create New Young Death Registry

By: Sean Patterson - October 24, 2013

The death of a child is rarely expected and sometimes hard to explain. Health professionals in the U.S. are now trying to determine just how widespread the impact of such deaths are in the country – and what can be done about it.

The U.S. National Institutes of Health (NIH) today announced that it is partnering with the U.S. Centers for Disease Control and Prevention (CDC) to create a registry of all child deaths in the U.S. The system, called the Sudden Death in the Young Registry, will be an extension of the CDC’s Sudden Unexpected Infant Death Case Registry. It will track the deaths of infants, children, teens, and young adults, compiling as much data on each case as possible.

“The sudden death of a child is tragic and the impact on families and society is incalculable,” said Dr. Jonathan Kaltman, chief of the Heart Development and Structural Diseases division at the NIH’s National Heart, Lung, and Blood Institute (NHLBI). “This registry will collect comprehensive, population-based information on sudden unexpected death in youths up to age 24 in the United States. It is a critical first step toward figuring out how to best prevent these tragedies.”

The new registry will be, in addition to other causes, collect data on sudden cardiac death and sudden unexpected death in epilepsy in the young. According to the NIH, data on these deaths are not reported on , and collecting them will help doctors determine the risk factors and causes of such deaths. It could also help formulate preventative strategies to prevent deaths in the future.

Data on the child deaths will be reviewed by teams in each of the states participating in the registry, and then compiled by a panel of medical experts for standardization. The standardized data will be stored in a centralized database managed by the Michigan Public Health Institute, and collected blood samples will be stored in a centralized biorepository.

Sean Patterson

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Sean PattersonSean is a staff writer for WebProNews. Follow Sean on Google+: +Sean Patterson and Twitter: @St_Patt

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  • JB

    great, another arsenine waste of taxpayer dollars. yay government, please protect us from ourselves.

    we don’t need this. we don’t need government collecting more data about us. they don’t need to know family medical history. they don’t need to know who’s in my address book. they have no right to stop and frisk. we don’t need another database about us and our children.

    • Wow

      Honesty, you have no idea what it is coming. I worked on an infant tracking system in the early 2000s. I was making six figures but I still quit because of ethical concerns. People in this country have literally no idea what is coming to this nation. Let’s just say that the very worst things the science fiction writers dream up about future society could easily happen if we are not careful.

    • I Agree

      I totally agree, but I think it is too late. Do people really think that all the spying and data mining in this country is because of terrorists? Really? None of that really effects a terrorist, but it is a great way to keep the people in line. In the past week you had the President of France and Germany, both tell the US to stop spying on them. Listen, if the presidents of your major allies think it is a problem —- you the common person better realize it is a problem.
      I foresee a time when the rest of the world tells the US to screw itself and decides to gang up on us. Old enemies will actually become friends and take on the US. The handwriting is on the wall.

      If you think this stuff is bad. Look at DNA collection initiates and RFID chip development.