Girl Slept For 64 Days, Missed Christmas

    November 19, 2012
    Amanda Crum
    Comments are off for this post.

Many of us use the phrase “I could sleep for days” when we’re exhausted, but for one Pennsylvania girl, it’s not just a saying; it’s reality.

17-year old Nicole Delien has a rare disorder called Kleine-Levine Syndrome, commonly referred to as “Sleeping Beauty Syndrome”. She endures several episodes a year, during which she passes out for up to 19 hours a day before she wakes in a sleepwalker-like state to eat and use the bathroom, then returns to bed. The disorder was difficult to diagnose, but even now that she’s on medication, Delien says she’s scared of when the next episode will strike. The problem is that patients can go for months without exhibiting any signs of the disorder before it sneaks up on them, and it acts quickly.

The Kleine-Levin website states that “At the onset of an episode the patient becomes progressively drowsy and sleeps for most of the day and night (hypersomnolence), waking only to eat or go to the bathroom. When awake, the patient’s whole demeanor is changed, often appearing “spacey” or childlike. When awake he experiences confusion, disorientation, complete lack of energy (lethargy), and lack of emotions (apathy). Most patients report that everything seems out of focus, and that they are hypersensitive to noise and light. In some cases, food cravings (compulsive hyperphagia) are exhibited. Instances of uninhibited hypersexuality during an episode have also been reported.”

Unfortunately for Delien and for others suffering with the syndrome, it renders patients unable to care for themselves, work, or attend school. In Levin’s case, it caused her to miss Thanksgiving and Christmas one year, as well as a concert for her favorite musician, Katy Perry. Perry heard about Levin’s ordeal, however, and secured her backstage passes for her next show.

For now, Delien is dealing with the symptoms as best she can with medication, but she says she worries about when she’ll go to sleep again and fail to wake up.

  • It Doesn’t Matter

    Cry me a river. . .

    • :p

      What kind of person are you? This is scary and a horrid thing to have! Get a life and find some simpathy for others!

      • B.E.Olso

        Right on :p

    • B.E.Olso

      You need to grow up and get your head out of your a** puke head. Think of someone but yourself for once in your useless life.

    • http://www.webpronews.com Jake

      They just don’t know do they? We have problems of our own and we don’t get sempathy for them

  • chyenne

    -Omqq Dhats , Krazii Dude..!!

  • Danielle

    Yes, she misses out on many holidays and special occasions. But, thats why when she is awake, she should (I hope she does) enjoy every moment as if it were her last…we all should.

  • http://www.SuperDomains.com SuperDomains

    I’ve slept for 2 days during a sickness; however, 64 days would be scary. I hope the medication helps.

  • Nick

    Wow she got away with out having to do all that Christmas shopping? Bar tender I’ll have what shes having.

  • Paul W

    I would have taken the hypersexuality sentence out of this article…unfortunately it means if it starts to happen while she’s in a social setting, a few unscruplous boys or even older men will be prone to taking advantage of her, and she won’t be able to report it. Sad, but true.

  • http://www.yahoo.com Alexander sawyer

    Well honestly it sucks for her because she is missing out on a larger portion of her life than she would if she were too only sleep 8 hours daily. Wonder of she has a enhanced recall ability????

  • christy

    How do you know if she sleep in 64 days? why dont they give her drink enegry to keep her awake?

  • christy

    Break Bad Sleep Habits!!!!!

  • mary

    WOW! Im an insomniac since not long but its look scary to sleep too much as this girl poor her :s she should give me some of her sleep !

  • http://www.webpronews.com Jake

    I understand were you come from but mind your own business. Do you like it when other people comment on things you say in a negative manor. I don’t think so, now do you?

  • http://YAHOO just someone

    lol creepy